Skip to content
Search

Latest Stories

Bedfordshire woman crowdfunds to save husband suffering from aggressive brain tumour

Brain tumours kill more children and adults under the age of 40 than any other cancer, says Brain Tumour Research.

Bedfordshire woman crowdfunds to save husband suffering from aggressive brain tumour

A woman in Bedfordshire has started crowdfunding in a desperate bid to get her ailing husband, who has been diagnosed with a brain tumour, treated abroad.

The case of Mohsin Mughal, a father of three from Luton, was later found to be an inoperable grade 4 glioblastoma (GBM). The tumour was diagnosed on 15th anniversary of his marriage with Rohima Mughal in May.


Mohsin, who worked as a specialist biomedical engineer, had been suffering with pains in his shoulder and foot, loss of hearing, muddled words, and confusion.

Mohsin Mughal with his three children Mohsin Mughal with his children -- (left) Inaaya, 12; (right) Arissa, nine, and Eyva, four, taken in September 2022 (Brain Tumour Research)

The 42-year-old has since had radiotherapy and chemotherapy but the suffering from fatigue, debilitating pains and confusion has not subsided. The plan now is to go to Germany for life-prolonging treatment but since it is prohibitively expensive, Mohsin's family has no other option but to crowdfund.

Rohima, who works with the charity Brain Tumour Research to highlight the situation that her family is in, said, “I’d already been searching the world far and wide for different treatments after finding out his tumour was wildtype and unmethylated, so less likely to respond effectively to chemo drugs, but now we know it hasn’t worked, this is more urgent than ever.

“There are some good treatment options in the US, but we are not able to get insurance to take Mohsin there. However, I’ve found IOZK Immunotherapy and CeGat in Germany, which are extremely expensive and would need to be started soon.

“IOZK offers a personalised therapy, which aims to mobilise the body’s own immune response, so that it can fight against the growth of the tumour. It costs an estimated £100,000 - £116,000 and can start around four weeks after the end of chemo, so we’re looking to get Mohsin there for the first week of October."

She added that the family has been told that her husband is a good candidate at the moment since his mobility is not too affected but some people wrongly assume that he is not as sick. She said time is key because if his mobility and symptoms worsen, the treatment may not be accessible any longer. "So we cannot wait," she said.

“CeGat uses genetic tumour diagnostics to tailor individual treatments and costs around £60,000. Researching everything has been a bit of a minefield, but we have paid for private consultants to get impartial opinions about the best course of action and hope these options will allow Mohsin more time to watch his children grow up," Rohima said.

The stress has taken a toll on her as well as she has lost a lot of weight and sleep.

"I live in a world of doubt and constant uncertainty now, always wondering if I’m doing the right thing and not wanting to fail Mohsin or our children," she said.

Thanking all those who have donated for their cause, she said it has given the family the hope and strength to keep the fight going. She added that it was overwhelming to think so many loved ones and strangers would come forward to help her family.

“We’re humbled by everyone’s generosity but the reality is that the costs of private treatment are astronomical and we still have a long way to go to be able to afford it," she added.

Charlie Allsebrook, community development manager for Brain Tumour Research, said, “Brain tumours kill more children and adults under the age of 40 than any other cancer, yet, historically, just one per cent of the national spend on cancer research has been allocated to this devastating disease.

“This historic lack of investment in research has resulted in very limited treatment options for brain tumour patients here in the UK. This leaves families like Mohsin’s feeling they have no option but to fund expensive treatments abroad, adding to their stress and anxiety at what is likely already the most difficult time in their lives. This is an outrageous situation and our hearts go out to them.”

To donate to the family’s crowdfunding page, visit www.gofundme.com/f/Mohsinsfight.

More For You

uk-energy-bill-iStock

Water bills, energy prices, and council tax are rising, while the minimum wage has also increased (Representational image: iStock)

iStock

April bill increases put financial strain on single parents

A RANGE of essential household bills are increasing from April, with Citizens Advice warning that single parents will be among the hardest hit.

Water bills, energy prices, and council tax are rising, while the minimum wage has also increased, BBC reported.

Keep ReadingShow less
Netflix drama Adolescence to be screened in UK schools
Stephen Graham and Owen Cooper in 'Adolescence'
Netflix

Netflix drama Adolescence to be screened in UK schools

THE NETFLIX drama Adolescence will be shown in UK secondary schools as part of efforts to address harmful online influences on young boys, officials announced on Monday.

The show has sparked debate over the impact of toxic and misogynistic content on the internet. Prime minister Keir Starmer met the show's creators, charities, and young people at Downing Street, calling the initiative an important step in starting discussions about the content teenagers are exposed to online.

Keep ReadingShow less
Sanger-Tribute

Indian high commissioner Vikram Doraiswami speaking at the memorial.

Bhavan London pays tribute to Joginder Sanger

BHAVAN LONDON held a tribute event on 27 March to honour Joginder Sanger, a British Indian hotelier and philanthropist who passed away at 82 on 28 February.

Sanger, born in Jalandhar, India, established several London hotels, including the Washington Mayfair Hotel, Courthouse Hotels in Soho and Shoreditch, and the Bentley in Kensington.

Keep ReadingShow less
Imran-Khan-Getty

Imran Khan, founder of the opposition Pakistan Tehreek-e-Insaf (PTI) party, has been in jail since August 2023. (Photo: Getty)

Former Pakistan prime minister Imran Khan nominated for Nobel Peace Prize

FORMER Pakistan prime minister Imran Khan has been nominated for the Nobel Peace Prize for his work on human rights and democracy.

The nomination was announced by members of the Pakistan World Alliance (PWA), an advocacy group formed in December, who are also part of the Norwegian political party Partiet Sentrum.

Keep ReadingShow less
Voices of Faith - Day 2: A profound confluence of spirituality, music, and dialogue

Barnaby Rogerson in conversation with Anthony Sattin (L) on day 2 of Voices of Faith

Voices of Faith - Day 2: A profound confluence of spirituality, music, and dialogue

Mahesh Liloriya

The second day of Voices of Faith unfolded with an enchanting blend of music, philosophy, and intellectual exploration at the Barbican Centre, London. This inaugural festival, curated by Teamwork Arts—the force behind the Jaipur Literature Festival (JLF) and JLF London—has been made possible by the Kamini and Vindi Banga Family Trust, with the support of Tech Mahindra. Eastern Eye and Garavi Gujarat serve as the official media partners, amplifying the festival’s reach and resonance.

Session 1- Echoes of eternity: The timeless notes of Kabir

Keep ReadingShow less